The fear is here again. I don't know what I'm scared off, I am just afraid. I have a tight knot of foreboding in my chest that will not go away
Watch me talk about my new website http://www.kidswithcoeliac.uk on Made In Cardiff TV. The website is still under construction, ease get I touch if you would like to be a part of it. Claire
. I was scared to go out and be with people but simultaneously afraid to be on my own. I never knew what would trigger a panic attack that could leave me in bed for days at a time.
Since this original post I have been contacted by lots of people that would like to support me in asking Jamie Oliver to help. I have set up a thread on his Facebook wall where you can leave a comment. Craig Williams MP and Rhun ap Lorweth AM have commented. To add your comment follow this link https://www.facebook.com/jamieoliver/posts/10153035704959807
Thank You for your support. Claire
It has been quite a week! Between school runs, homework and tonsillitis I found myself with the opportunity to speak out about the challenges we face when eating out with our children who have Coeliac Disease. An opportunity to address a celebrity chef whom I greatly admire and respect, Jamie Oliver, in The Daily Telegraph
For those of you who don’t know Coeliac Disease is an auto immune disease which causes an immune response that damages the gut. I won’t get to too technical but basically the villi, (little finger like protrusions) in the gut swell up, causing a range of symptoms and preventing food being absorbed properly. Our kids both get awful stomach pains, constipation, headaches, fatigue and muscle aches just from eating a grain of Gluten. That’s the thing you see, with Coeliac Disease you can’t have “just a little bit” and be OK, you cannot eat any…
View original post 707 more words
So this diagnosis has hit me hard. They were diagnosed in September and I have spent the time since then scrambling to get a hold on the day to day challenges they/we now face. Dealing with the emotional impact it has had on the kids and helping them come to terms with life long sentence biology has handed them.
They say it takes a village to raise a child and recently I have found a village of people on social media. I have a group of girls that support and challenge me to be the best version of myself. I also have a community of people that have been invaluable in helping me deal with kids coeliac disease.